HOW CAN YOU HELP?

 

Neuroimmune Alliance aims to open the first clinic in West Sussex to offer a multidisciplinary approach based on top M.E professionals recommendations.

 

Please support us and help raise funds for this desperately needed service in Sussex.

 

The first donations will go towards our Education and Outreach project. Neuroimmune Alliance has created a 12 page information and awareness booklet on ME which is to be distributed across Worthing, Rustington, Littlehampton, East Preston and Angmering and eventually Brighton and Hove. In order to do this we need to raise vital funds to cover print and distribution costs.

The second part of our project will be a training course for GP’s, run by top ME Professional. Again we need funds to make this happen.

The other side of NIA is the biomedical clinic which we aim to open in summer 2014.

Be a part of the solution – DONATE NOW.

OUR FUNDS WILL BE SPLIT WITH ANOTHER ORGANISATION IN AMERICA – DETAILS OF WHICH TO FOLLOW

To donate go to the home page and press the ‘DONATE’ button or go to Paypal and send to info@neuroimmunealliance.org

 

WHY M.E?

 

There is only ONE clinic in Sussex for over 4,000 M.E sufferers. This clinic only offers a few sessions of group therapy. No drugs, no supplementation advice, no blood tests and no treatment.

 

WHAT IS M.E? (taken from the Hummingbird Foundation)

 

Myalgic Encephalomyelitis is a debilitating neurological disease which has been recognised by the World Health Organisation (WHO) since 1969 as a distinct organic neurological disorder with the code G.93.3. It can occur in both epidemic and sporadic forms, over 60 outbreaks of M.E. have been recorded worldwide since 1934. M.E. is a systemic neurological disease initiated by a viral infection. M.E. is characterised by (scientifically measurable) damage to the brain, and particularly to the brain stem which results in dysfunctions and damage to almost all vital bodily systems and a loss of normal internal homeostasis. Substantial evidence indicates that M.E. is caused by an enterovirus. The onset of M.E. is always acute and M.E. can be diagnosed within just a few weeks. M.E. is an easily recognisable distinct organic neurological disease which can be verified by objective testing. Fatigue is not a defining or even essential symptom of M.E. People with M.E. would give anything to be only severely ‘fatigued’ instead of having M.E.

 

WHAT’S WRONG WITH THE CURRENT SYSTEM?

 

The NHS ‘Fatigue only’ clinics are designed to treat patients with fatigue and depression, they are not run by neurological specialists, they are run by any lay NHS staff who are trained by a manual written by psychiatrists who state “...Symptoms may increase again causing fear of relapse, but remember these are the symptoms of physical deconditioning, nothing else.". This doesn’t fit the correct model of real M.E patients who have been successfully treated in the United States with antiviral and immunomodulation therapy. Patients with real neurological symptoms are turned away from these ‘fatigue only’ clinics. The severely affected 25% of the M.E population do not have ONE specialist hospital in the UK.