Aims and Objectives
To provide education and awareness of neuroimmune diseases within the medical profession
Training program for GP’s
Work with NICE on amending their Guidelines and providing more support for the severely affected
To open a Sussex-based treatment centre that will that help and benefit patients
To liaise with NHS Trusts regarding inpatient hospital admission policies for patients with M.E
To remove all M.E/CFS services from under Primary Care Trusts’ mental health services and place them under neurology
To re-assess all patients using the International Consensus Criteria
To research Methylation and Gluthatione depletion in patients with Neuroimmune Disease
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Neuroimmune Alliance is a
brand new organisation representing sufferers of rare diseases that affect the
immune and central nervous systems. Our intention is to raise understanding of
these diseases amongst the medical profession and improve services and access
to specialist care.
Neuroimmune Alliance proposes a new treatment model for M.E based on revised diagnostic criteria - working with local health authorities and central Government to establish a better framework for M.E in the United Kingdom.
A new treatment centre for M.E, particularly the severely affected, is top of the agenda of the Alliance and we fully support the work of Invest in M.E and 'Let's Do it for M.E' who are establishing a new biomedical treatment and research centre at the University of East Anglia in Norwich.
NeuroImmune Alliance does not support the current CG.53 National Institute for Clinical Excellence Guideline for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis or its principle recommendations of cognitive behaviour therapy and graded exercise therapy. Instead Neuroimmune Alliance believes a holistic and multidisciplinary approach towards the illness is needed and a treatment plan to be tailored to each individual.
A Multidisciplinary Approach
Neuroimmune Alliance looks forward to working with researchers and physicians in New York and the UK to help patients with the physical symptoms of ME and enable them to experience a greater quality of live.
“Patients First” is the motto for our soon to be patient clinic and we look forward to utilising a multidisciplinary approach to treating M.E patients.
Our clinic hopes to be one of the first to offer comprehensive serology and immune profile testing as well as offering nutrition and supplementation advice, pain management and support.